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After a new dementia diagnosis

Most families have more time than they fear and less time than they think. Use it.

Quick answer

Put legal and financial documents in place while the person can still sign them, review driving and medication safety, learn what stage the doctor believes the disease is in, and connect the primary caregiver with support before a crisis.

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What should a family do first after a dementia diagnosis?

Put legal and financial documents in place while the person can still sign them, review driving and medication safety, learn what stage the doctor believes the disease is in, and connect the primary caregiver with support before a crisis.

The legal step is the most urgent: a durable power of attorney and a health care power of attorney become much harder to arrange later. Ask the doctor about a care plan visit, which Medicare covers for people with cognitive impairment.

Can someone with dementia live in regular assisted living in South Carolina?

Yes, in the early stages: a South Carolina CRCF without an Alzheimer's special care unit can care for a resident with dementia who is not a danger to themselves or others and whose needs staff can meet, but exit-seeking or unsafe behavior usually requires a secured unit.

DPH's licensing data (as of October 31, 2026) flags an Alzheimer's special care unit at 35 of the 61 senior-serving CRCFs in Greenville, Anderson, Pickens and Laurens counties, and Alzheimer's care without a unit at 2 more; 6 of the 34 licensed nursing homes carry an Alzheimer's flag. Choosing a building that has both standard assisted living and an Alzheimer's unit can avoid a second move later.

What should we look for in a memory care unit?

Ask for the written disclosure South Carolina's Alzheimer's Special Care Disclosure Act requires, then check overnight staffing on the unit, staff dementia training, how the day is structured, how the unit handles agitation without relying on medication, and what would require a move to a nursing home.

Visit in the late afternoon, when sundowning is most visible, and watch how staff respond to residents. A calm unit with staff who know residents by name tells you more than the decor.

How can caregivers get support in the Greenville area?

The Family Caregiver Program at the Appalachian Council of Governments Area Agency on Aging (864-242-9733) and Upper Savannah COG's family caregiver support (for Laurens County) offer information, respite help and caregiver training, and adult day care gives caregivers a regular break.

Caregiver exhaustion is the most common reason people with dementia move earlier than planned. Respite, even a few hours a week, protects the caregiver's health and often extends the time at home. The Community Choices waiver includes respite for eligible participants.

When does someone with dementia need a nursing home?

When they need the continuous daily attention of a licensed nurse, are totally dependent in all daily activities for more than 14 consecutive days without improvement, or have behaviors a CRCF cannot safely manage, South Carolina's Regulation 60-84 requires a transfer from assisted living within 30 days.

Many people with advanced dementia remain in an Alzheimer's unit with hospice support. Nursing homes that carry an Alzheimer's flag on DPH's data appear in our memory care directory.

At a glance

Early stageLater stage
SettingHome with help, or standard assisted livingAlzheimer's special care unit or nursing home
PriorityLegal planning, safety, caregiver supportSecurity, structured days, comfort
ProgramsAdult day care, respite, Community ChoicesHospice, Medicaid nursing home coverage
Key documentPowers of attorneyThe Alzheimer's special care disclosure

Sources include S.C. Code Regs. 60-84, DPH Healthcare Quality and SCDHHS pages and bulletins, CareScout, CMS and VA rate tables as cited above; see our editorial standards.

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